Frenemies!

It is May! May is Lupus Awareness Month. If you are unfamiliar with lupus check out Purple Reign.  I have to say one of the things that I hate about having lupus is being sensitive to the sun. I miss it so much! Sometimes I get emotional about it but I remind myself that I’m being dramatic and that it could be worse. You can’t blame a girl for wanting to have fun in the sun. My rheumatologist advised me that my proper attire for the beach is jeans and a long sleeve shirt. How dreadful! I miss laying out in the sun and looking at the clouds or exercising outdoors. I miss the simple things. I love the sun but it’s no good for me. People with lupus can experience skin rashes, joint pains, fatigue, fever, and/or weakness from being in the sun. I may miss the sun but it is no way that I want to deal with the consequences of not listening to my doctor. I may catch quick rays before running to a shaded area or inside but that’s about it. The lack of sun exposure means that I am lacking vitamin D. Signs of vitamin D deficiency are fatigue, bone pain, muscle weakness, and/or depression.  You can get vitamin D from fish, egg yolks, and beef liver. If you are vegan like me then you can get vitamin D from mushrooms, tofu, fortified non-dairy milk, plant-derived supplements, and fortified cereal. Getting enough vitamin D is important. Lupus warriors just have to watch where our vitamin D comes from. The relationship between lupus survivors and the sun isn’t the greatest. We have to do what works for us on our journey. Make sure you get your vitamin D and shine on!


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